Chapter Staff
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Perry Jowsey, Executive DirectorPerry Jowsey has served as Executive Director of the National Bleeding Disorders Foundation, Colorado Chapter since 2019, leading a statewide strategy that centers education, advocacy, research, and access. Under his leadership, the chapter budget has grown 47% and delivers more than 40 programs annually serving over 1500 community members to reduce isolation and close gaps in care and support.
Perry has prioritized policy and systems change as essential levers for equity. Together with leaders in our community, he has helped advance legislation to strengthen consumer protections and improve affordability for patients who rely on lifesaving treatments. His work reflects a consistent commitment to ensuring that vulnerable populations not only receive services but also have a platform to shape the systems that affect their health and well-being.
Perry earned Bachelor of Arts and Master of Arts degrees in Communication from the State University of New York at Buffalo, where he is proud to be a first-generation college graduate. He has raised more than $25 million in charitable dollars throughout his career. Athletics play a big role in the Jowsey household, where Perry still competes in competitive men’s baseball, has coached teams to championships in 3 sports, and son Trenton is a collegiate athlete.
Email: pjowsey@bleeding.org
Phone: 720-626-1263
Bottom line, our staff is committed to make sure your voice is heard. If it concerns our cause, rest assured our staff is on it.
Chapter Advisory Council
Our advisory council represents a cross-section of our community and is an advocate for the bleeding disorders community. The members work hard to ensure long-term sustainability of the organization so that the funds raised directly affect results.
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Kristin Powers, MPH - Council PresidentWith experience in practice administration, health information systems, risk mitigation, and project management, I helped drive operational excellence and technology adoption across healthcare environments. My background bridges clinical systems, data strategy, and patient success, enabling organizations to improve outcomes and manage effective risk.
My husband and I are currently in the process of opening a HOTWORK studio in Colorado Springs, reflecting our shared commitment to health, wellness, and community.
In addition, living with von Willebrand Disease (VWD) and raising a son with the same diagnosis, I bring a unique dual perspective as both patient and caregiver. I am a dedicated advocate for the bleeding disorders community, committed to advancing patient-centered care, amplifying patient and caregiver voices, and improving awareness, education, and access to treatment.
Outside of my professional life, I am a proud mom of two boys and a wife who values time spent with my family, especially outdoors hiking, biking, and exploring the mountains. I enjoy reading, building Legos, and listening to music. We recently embraced 3D printing as a new creative outlet.
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Megan Weissberg - Council SecretaryMegan Weissberg joined the bleeding disorders community in 2020, when her youngest son was born and diagnosed with Severe Hemophilia B. Since then, she and her family have been active participants in the Colorado Chapter. Megan has served on NBDF committees for scholarship selection and the women’s group. Every year, she captains a team for the NBDF Walk to help raise money. Megan has also done advocacy work for bleeding disorders, both locally in Colorado as well as in Washington DC.
Megan graduated from Southern Utah University with a Bachelor’s degree in Business Management and a minor in music. She currently is a stay-at-home mom to her three sons, who are always testing her management skills. In her free time, Megan enjoys yoga, gardening, sudoku puzzles, and spending time outdoors with her family.
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Julie SmithJulie Smith serves as the Operations Director at the University of Colorado Hemophilia and Thrombosis Center (HTC), where she provides operational and strategic leadership across clinical care, research, education and advocacy, quality improvement, and pharmacy programs. With over 15 years of experience at the HTC, including leading the clinical research program, Julie has supported the advancement of clinical trials and helped bring novel therapies to market to improve care and outcomes for individuals with bleeding and clotting disorders.
Through her work and long-standing involvement in the bleeding disorders community, Julie is passionate about fostering connection, advancing education, and expanding access to high-quality care. She is driven by the opportunity to create hope for patients and families navigating bleeding and clotting disorders. Julie is honored to serve on the NBDF Colorado Chapter Advisory Council and contribute to strengthening support and resources across the state.
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Kim HurdstromKim Hurdstrom is a Clinical Nurse Coordinator with the Hemophilia and Thrombosis Center in Colorado. She has a BSN-RN from Walden University and an ASN-RN from College of Southern Nevada. She is certified in Clinical Care Coordination and Transition Management. She has worked with bleeding disorder patients for the last 12 years. She is a member of the NDBF nurse work group. She is part of the MSHN regional patient education work group and works with various members of the HTC to develop patient education standards at the center. She is a Colorado native and has 3 children.
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Cassandra Miller
