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We are collaborating with the Hemophilia and Thrombosis Center to connect with the community on the Western Slopes during the Grand Junction Outreach Clinic offered by the HTC! If you would be interested in attending a dinner or bowling event with the chapter on Tuesday, June 23rd or Wednesday, June 24th, please complete the form below so we can email you event information when it is scheduled.
We are pleased to be offering The Jana Marie Lambert Memorial Scholarship again this year thanks to the continued generous support of a donor!
The Jana Marie Lambert Memorial Scholarship was established in 2016 to honor Jana’s life. Born on December 1st, 1968 in DeSoto, TX, Jana died from complications due to breast cancer on April 25, 2015 in Broomfield, CO. Jana is survived by her mother Janice, husband Ken and her children Carter and Angelica. In her 47 years of life, Jana was the embodiment of optimism, lifting the spirit of everyone she came into contact with. Jana traveled the world, provided a safe and loving home to other people’s kids, and remained unfathomably positive in the face of cancer.
This scholarship is restricted to individuals who reside in the service area of the Colorado Chapter of the National Bleeding Disorders Foundation. The Jana Marie Lambert Memorial Scholarship Application must be received at the NBDF Colorado office by June 30th, 2026–no exceptions, electronic submissions only. Applications completed by anyone other than the applicant will not be accepted. Incomplete applications will not be considered. Selected recipients will be contacted after July 15, 2026. Payments will be made directly to the institution specified in the application and under no circumstances will funds be directly provided to individuals.
Please be sure to attach all supporting documentation in the area provided below. Incomplete applications will not be considered.
Application Checklist
Completed applications include:
1. Submission of the form found by following the link below to our scholarship page
2. Please email or have the recommenders email your letters of recommendation to acheshire@bleeding.org with the subject line (Name) Scholarship Letter of Recommendation.
Letters of Recommendation Details (2):
- This letter must be from a teacher, instructor or professor who taught you in a class and should address your potential to achieve your academic goals.
- Can also be from teacher but may include employer, church leader, health care provider or other professional who can speak to your qualifications
3. High school/college/university transcript (can be unofficial transcript)
4. Copy of acceptance letter from college/university (incoming freshman only)
Please follow this link to the application: https://co.bleeding.org/support-resources/scholarships.html
Families in Southern Colorado, this one is for you! We are excited to offer our first ever mini education day at Great Wolf Lodge in Colorado Springs on May 16th. This is an opportunity for families in Southern Colorado and other areas outside of Metro Denver to engage with each other and the chapter, get valuable education, and enjoy all the fun the waterpark has to offer!
Spots are limited so please registered promptly. Due to the limited number of rooms, priority will be given to those who live outside Denver/near Colorado Springs, and we won't be able to include all who want to attend. After those families are served, remaining rooms will be offered with priority given to families who attended Education Empowerment Days or our advocacy events February. Only one room is available per family. For the best chance to secure a room, you will need to register by April 15, 2026.
The event starts Saturday morning at 10am with the educational part of the event. We will open with two education session followed by a complimentary lunch hour and then the final session of the day. We will wrap up this portion of the event at or before 3pm. Families will then be able to check onto the hotel for their overnight stay and access the waterpark for an afternoon and evening of family fun and community connections. We are excited to bring our community together in this new and exciting way. Lunch Saturday will be the only meal provided, so families will be on their own for dinner but are encouraged to dine together and get to know each other.
Thank you to our sponsors, Takeda, CSL Behring, and Sanofi, for making this event possible!
Welcome to Family Camp – a free weekend getaway to build community in the mountains! Immerse yourself in an extraordinary experience designed for individuals, families, and children living with a bleeding disorder. Thanks to a generous donation in honor of J. Richard Long, we are excited to welcome families to join us for an additional night at camp! We will kick-off Friday evening with a game/movie night for families to enjoy before sleeping at the camp so we can all enjoy breakfast together the following morning. Camp will continue with activities, food and connection all day Saturday and into Sunday morning.
Our mission is simple yet profound: to unite the bleeding disorder community in a haven of fun, relaxation, support, and the forging of connections with like-minded families. Lodging and meals are covered by the chapter! The HTC also supports infusion education at Family Camp to give families a chance to practice outside of the clinic setting.
Family Camp is tailor-made for:
- Families with young children living with a bleeding disorder
- Families seeking connection within the bleeding disorders community
- Individuals or children eager to explore or take the first steps toward self-care and self-infusion
**Don't Miss Out – Register Now!**
Space is limited and participation cannot be guaranteed once all available rooms are booked. Secure your spot for a transformative experience.
Come meet us for a hike and ice cream at Garden of the Gods in Colorado Springs! This gorgeous free park is a great place to enjoy the beauty of Colorado with your fellow community members. We will be hiking the Gateway/Central Gardens Trail which is a fully accessible 2.5-mile path that goes past some of the tallest rock formations and includes amazing views. It should be doable for people of all ages and abilities. We will meet at the trailhead at 8am to start the hike and head over to the trading post afterwards for ice cream and other treats! Please note that the cost of ice cream is not covered by the chapter.
Young Adults ages 17-28, come join us for an afternoon learning about finances and trying your hand at axe throwing! We will start the afternoon with a delicious lunch at YaYa's Euro Bistro at 12:00pm where you will get an Introduction to Financial Planning talk from Quincy Bloem, a financial advisor at Northwestern Mutual. After lunch, we will head over to Double Edge Axe Throwing for 2 hours of throwing from 2:00-4:00pm. Participants must attend the lunch session to be eligible for axe throwing.
Participants ages 15-16 will be allowed to attend with an older sibling. waivers for axe throwing must be completed in advance.
Join us for our second Disc Golf Clinic led by community members John Christen and Brian Almquist! We will be meeting at hole one of the Valmont Disc Golf Park in Bouler at 10am. This clinic is great for people of all ages and skill levels who are interested in getting better at throwing the frisbee. There is on-street parking around the park to use.
Join us for another unforgettable experience with Backpacks+Bleeders! Our annual Families on The River rafting trip will be on Saturday, June 27th! We'll kick off the adventure with a delicious lunch, a brief educational presentation, and icebreakers at the check-in location, followed by half-day of rafting.
Embark on a thrilling journey through the Bighorn Sheep Canyon, where a mix of mild to moderate adventures awaits amidst breathtaking landscapes. This area is renowned for its resident Bighorn sheep, offering glimpses of these majestic creatures along the riverbanks and rugged mountain slopes. Even if we don't catch any wildlife, the time navigating the rapids is always exciting.
If the rapids seem intimidating to you, you can take the alternative scenic float which takes you on a calmer stretch of the river. This option may be better for younger children.
Participants must be at least 6 years of age to attend. Waivers from Echo Canyon must be completed by June 13th. Wetsuits and splash jackets are available as needed. No refunds will be offered for this event.
Get ready for an incredible day filled with adventure and natural wonders!
Sign up your child for our award-winning camp experience! Children ages 7-17 age eligible to attend this getaway in the mountains which includes cabin style living, s'mores around the fire, fishing, ziplining, swimming, fun all camp activities, and more! The Hemophilia and Thrombosis Center also provides a full medical team to provide bleeding disorders education and medical care. This year children ages 13-17 will also be going on a mid-week camping offsite with the Breckenridge Outdoor Education Center.
More details can be found in the application! Register here: https://hemophilia.campbrainregistration.com/
The National Bleeding Disorders Foundation's 78th Annual Bleeding Disorders Conference will take place from August 13-15, 2026. We hope you will join us in Orlando, Florida, for our premiere three-day event designed to connect, educate, and empower those in the Bleeding Disorders community. Experience a dynamic program filled with engaging educational sessions, meaningful networking opportunities, and a vibrant exhibit hall highlighting the newest innovations in research, treatment, and patient care. With Orlando’s exciting attractions and our family-friendly venue, this conference offers the perfect blend of learning, connection, and memorable experiences..
The Colorado Chapter encourages member participation in these unique experiences and has limited funds to help facilitate your involvement. To be eligible, you must reside in the service area of the CO Chapter and be willing to purchase all tickets and hotel accommodations in advance. Travel Grants are available for reimbursement after event participation is complete. Receipts must be submitted for processing. Applications must be completed by June 30th, 2026 for consideration.
2026 Grant amounts are as follows:
• Single Community Member: $500
• Two Members: $1,000
• Families of 3-4 (over age 2): $1,500
• Families of 5+ (over age 2): $2,000
To be eligible for a travel grant, complete the application via the link below. Due to limited funding, not all applications can be awarded. Preference is given to active Chapter members who are first time attendees and/or who participated in our local Education Empowerment Days conference and advocacy events. These grants can be used for event registration fees, transportation, and/or lodging expenses. Grants are contingent upon fund availability.
