You’ll always know what’s going on with our organization. Just bookmark this page and check back often for the latest programs and events.
Attended an event recently? Let us know how we're doing!
Our annual holiday party will be on December 4th this year starting at 5pm at the Children's Museum of Denver! We will have the whole museum to ourselves to enjoy interactive exhibits, a fully equipped art studio including a kiln for pottery making, good food, and even better company. The museum is fun for all ages, and the exclusive access means you will have more space to play. Come together as a community to embrace your inner child and celebrate all we have accomplished this year!
Schedule:
5pm-6pm - Families Arrive and Networking
6pm-7pm - Dinner and Chapter Presentation
7pm-9pm - Free time in the Museum Exhibits
Share Your Voice – Shape the Future.
Our annual Stakeholder Meeting is a pivotal event for individuals impacted by bleeding disorders to unite, share experiences, and shape the direction of our community for the coming year. This dialogue has been crucial in helping us advance legislation addressing insurance and direct care over the past 3 years. Today’s landscape is uncertain – with access to affordable treatment in question – and your participation is needed now more than ever.
This is a working dinner where your insights and contributions will play a significant role in setting our agenda for 2026, focusing on public policy and health equity. There will be local and national updates, but by attending you are agreeing to actively lend your voice. Due to space limitations, we can only accommodate adult community members (no children).
In addition to our Holiday Party in Denver, we are offering a smaller Holiday Party for our Southern Colorado community! The event will be on Sunday, December 14th from 1:00-3:00pm at Top Golf in Colorado Springs. There will be a fajita lunch provided, and bays reserved for our group to golf from. This experience is offered cost free to families and is a great opportunity to end the year together and build our growing South Colorado Community.
Because our reservation can accommodate a limited number of people, registration priority will be given to residents of El Paso, Pueblo, and surrounding southern counties and registrations from the ten county Metro Denver area and surrounding counties will be placed on a waiting list. Please reach out to the chapter if you have questions about whether your address falls in the Southern Colorado area.
As part of a new chapter initiative, we are excited to announce this event for our young adult community ages 17-28! Our goal with this and future programming is to keep our young adults engaged after their camp years so they stay connected to each other, develop leadership roles within the community, and stay informed on the changing health and insurance landscape.
Our kick-off event is all about coming together for fun and games at Main Event! Dinner will be served from 6:00-7:00pm where we will have a brief brainstorming discussion about what events and resources would be most beneficial for this age group between transitioning to All You Can Play throughout the venue which includes bowling, arcade games, laser tag, and pool with access cards that last until 9:00pm. Come out to compete, relax, connect, and help up build this new program!
This event is all inclusive but is ONLY AVAILABLE to community members ages 17-28. You will be required to enter your age and attest to its accuracy.
